Welcome to the website of the International Association for Rare Ophthalmic Diseases
IAROD is taking action to COMBAT DIAGNOSTIC ERRORS AND IMPASSE in rare ophthalmic diseases.
Promote collective action with the aim of improving the lives of patients suffering from rare eye diseases.
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A rare disease affects a limited number of people, which necessitates the organization of specialized care.
The 7,000 rare diseases identified to date
including 900 rare diseases affecting the eye
reach more than 3 million people
That’s 4.5% of the population.
Rare diseases represent a major public health challenge in France.
Diagnostic delays of 5 to 8 years negatively impact patients’ quality of life.
It is essential to strengthen ties between public and private stakeholders and patient associations to stimulate research and explore new avenues that will lead to the discovery of promising new solutions and treatments that caregivers and patients need.